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Craig tells his own story
Craig is a writer and performer who refuses to let Hemophilia A speak for him.
When his doctor told him ELOCTATE prophylaxis offers bleed protection* you can count on, he started a new chapter in his treatment journey.
*ELOCTATE has been proven to help patients prevent bleeding episodes using a prophylaxis regimen.
See TranscriptQ&A
You are a self-described passionate man. What are your passions?
I’m passionate about fairness and equality. I grew up with Hemophilia A feeling like I was treated differently, like I was sometimes judged. I’m also passionate about my creativity and restoring old cars.
How did you feel when your doctor suggested ELOCTATE?
I approached my switch to ELOCTATE the same way I approach life—with a sense of possibility.
What do you like about ELOCTATE?
I feel ELOCTATE offers me the bleed and joint bleed protection I need to explore the passions I have — protection I can count on.
And what’s in store for your next chapter?
I like to talk to other people about Hemophilia A, at conferences, one-on-one, and I’m constantly moved by the way my stories affect other people, the way they touch other people.
Note: Patient stories reflect the real-life experiences of persons diagnosed with hemophilia A who have been prescribed ELOCTATE. However, individual experiences may vary. Patient stories are not necessarily representative of what another person using ELOCTATE may experience. Talk to your healthcare provider about what's right for you. ELOCTATE Peers™ have been compensated for sharing their stories.
The recommended starting regimen is 50 IU/kg every 4 days as directed by your doctor. In children under 6 years of age, the recommended starting regimen is 50 IU/kg administered twice weekly. The regimen can be adjusted based on your body's individual response
Narrator:
ELOCTATE antihemophilic factor recombinant FC fusion protein. Please stay tuned for important safety information at the end of this video.
Craig:
My name is Craig. I live in California. I was born in 1957 and I was diagnosed after two days with hemophilia A: severe factor VIII deficiency. It's this funny thing about growing up with a chronic disease, especially one that's visible often— is you, you sort of don't want the disorder to define you — and so you want to minimize its impact on your life.
In the early 60s they discovered this thing that was called pool concentrate and eventually cryoprecipitate, and so you had an increasingly more ability to treat and the ability to treat people as they got older, and their bodies were bigger. In the early 1980s we started hearing about hemophiliacs coming down with AIDS. So, in January of 85, I was tested positive for HIV and that caused me to change my life, but not in the way you might think. I went back to Graduate School, I got married, and I had a kid.
This is, this is what you do if you're not going to let your life be controlled by your disease. Now, I've been watching for a while and knowing that there was this product ELOCTATE, and I had researched it and I had talked to some doctors and they're very excited about it. As soon as it became available to them, we both agreed that it would be a good thing for me to try. When I started ELOCTATE, I had a conversation with my doctor. I think there were two issues that we really talked about as one would it be effective and controlling bleeds for me, and the other one was the risk of developing inhibitors on this drug. And I've been very happy with the — the bleed control. I've been very happy with how my body's responded while being on ELOCTATE.
I'm a busy guy. I’m trying to do performing. I'm trying to do writing. I'm doing some workshops and a bunch of other stuff, and my life is pretty busy. So, I'm not really good at getting up in the morning and this day every morning I'm going to treat with the meds. I really like this new app, Micro 8, which just gives me reminders and emails and so forth when I'm supposed to be treating.
I do know that there are risks associated with ELOCTATE including but not limited to headaches and general discomfort. I met my CoRe manager at a conference, a local conference for people with hemophilia. She gave me a little presentation about them, the drug that helped me understand a little bit more about it and then I think it's been good to have her as a resource.
I'm constantly moved by the way my stories affect other people, the way they touch other people. So, being an ELOCTATE Peer for me is just another avenue, another venue for me to continue to do these kinds of things that are fun for me and seemingly valuable for other people.
ELOCTATE® [Antihemophilic Factor (Recombinant), Fc Fusion Protein] is an injectable medicine that is used to help control and prevent bleeding in people with Hemophilia A (congenital Factor VIII deficiency). Your healthcare provider may give you ELOCTATE when you have surgery.
IMPORTANT SAFETY INFORMATION AND INDICATIONS
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IMPORTANT SAFETY INFORMATION
Do not use ELOCTATE if you have had an allergic reaction to it in the past.
Tell your healthcare provider if you have or have had any medical problems, take any medicines, including prescription and non-prescription medicines, supplements, or herbal medicines, have any allergies, are breastfeeding, are pregnant or planning to become pregnant, or have been told you have inhibitors (antibodies) to Factor VIII.
Allergic reactions may occur with ELOCTATE. Call your healthcare provider or get emergency treatment right away if you have any of the following symptoms: difficulty breathing, chest tightness, swelling of the face, rash, or hives.
Your body can also make antibodies called "inhibitors" against ELOCTATE, which may stop ELOCTATE from working properly.
Additional common side effects of ELOCTATE are headache, rash, joint pain, muscle pain and general discomfort.
If you have risk factors for developing abnormal blood clots in your body, such as an indwelling venous catheter, treatment with Factor VIII may increase this risk.
These are not all the possible side effects of ELOCTATE. Talk to your healthcare provider right away about any side effect that bothers you or that does not go away, or if bleeding is not controlled after using ELOCTATE.
INDICATIONS
ELOCTATE® [Antihemophilic Factor (Recombinant), Fc Fusion Protein] is an injectable medicine that is used to help control and prevent bleeding in people with Hemophilia A (congenital Factor VIII deficiency). Your healthcare provider may give you ELOCTATE when you have surgery.
PLEASE SEE FULL PRESCRIBING INFORMATIONMANUFACTURED BY
Bioverativ Therapeutics Inc.
Waltham, MA 02451 USA
U.S. License #2078
CLICK HERE TO LEARN MORE ABOUT SANOFI'S COMMITMENT TO FIGHTING COUNTERFEIT DRUGS.
INDICATIONS
ELOCTATE® [Antihemophilic Factor (Recombinant), Fc Fusion Protein] is an injectable medicine that is used to help control and prevent bleeding in people with Hemophilia A (congenital Factor VIII deficiency). Your healthcare provider may give you ELOCTATE when you have surgery.
