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JENNY AND PAXTON DIVE IN
Paxton is a little guy with big goals. That’s because his mom, Jenny, has encouraged him to take ownership of his condition and be proactive about his bleed and joint bleed protection* with ELOCTATE.
*ELOCTATE has been proven to help patients prevent bleeding episodes using a prophylaxis regimen.
See TranscriptQ&A
What attracted you to ELOCTATE?
I was really intrigued by its extended half-life, and how a steady prophy schedule can help protect his growing joints from bleeds.
How’s he doing on ELOCTATE?
We're so happy. He's always on the go, and ELOCTATE prophylaxis is bleed protection we can count on. But everyone is different, and that's just his experience.
What’s Paxton been up to lately?
All sorts of stuff. He rides his bike. He’s reading and doing math. He loves goofing around with his little sister.
We heard he’s a big swimmer too.
Absolutely. He’s like a dolphin when he gets into the pool. But really, every day he’s trying something new. It’s great to see him dive in and take on new challenges.
Note: Patient stories reflect the real-life experiences of persons diagnosed with hemophilia A who have been prescribed ELOCTATE. However, individual experiences may vary. Patient stories are not necessarily representative of what another person using ELOCTATE may experience. Talk to your healthcare provider about what's right for you. ELOCTATE Peers™ have been compensated for sharing their stories.
The recommended starting regimen is 50 IU/kg every 4 days as directed by your doctor. In children under 6 years of age, the recommended starting regimen is 50 IU/kg administered twice weekly. The regimen can be adjusted based on your body's individual response
Narrator:
ELOCTATE antihemophilic factor recombinant FC fusion protein. Please stay tuned for important safety information at the end of this video.
Jenny:
Before Paxton was born, I really just lived in a bubble world where anything that we had thought that we were going to do, we would just plan it and do it. We had wanted to get pregnant. We got pregnant pretty quickly. And there he was, and we really did feel like this is it. Life is so good right now. It was just, it was perfect.
I'm Jenny. I live in Ohio with my husband Steve and our two kids Paxton and Millie. Paxton is 7 and he has moderate hemophilia A. The day after Paxton was born, he went down for circumcision and didn't return for a long time. They told us that they needed to transfer him to the Children's hospital, and they were going to take him to the NICU there. The doctor came in, and sat down, and just delivered the diagnosis to us and said, “your son has hemophilia.” And I'm like, “OK what does that mean? What do we do? How do we fix it?”
You know when they started saying things like, “this is lifelong,” that was hard. With hemophilia, there's sort of a honeymoon phase where there's not a lot that takes place based upon, you're always holding a baby, or they're in a bassinet, or they're in a car seat, but with increased mobility, came increased infusions. We made the decision to not put him on a prophylactic schedule. So, we were just treating on demand, but we ended up in the hospital quite often. It kind of became a second home to us. Sometimes he'd be a pincushion. We'd have to bring a team of nurses in that would have to brace all of his limbs and hold him down. When you’re a mom and your instinct is to protect your child, sometimes it doesn't feel like you’re protecting them by pinning them down and having them scream at the top of their lungs till they're sweating and red faced. It doesn't feel like you're protecting them.
So, when Paxton was getting ready to start preschool, we sat down with our hematologist, and we talked about the products that were on the market and we really liked that ELOCTATE would be a prolonged half-life. We went over all of the benefits and risks and we talked about headaches and rash and after discussing all that, my husband and I decided that ELOCTATE was going to fit best for our family. We're really happy with our results with ELOCTATE. Paxton is treated twice a week. We do Mondays and Thursdays. That's worked really well for our family. Paxton has not had a breakthrough bleed since he's been on the dose. It's made a really routine lifestyle for us and instead of hemophilia being in the spotlight, it kind of gets to take a back seat and we just go on with our lives. This is just our experience so talk to your hematologist to find out more.
Paxton has really amazed me with how he likes to help and take part of the infusion process. He gets his medication out and ready. He mixes it up. He helps me push when I get IV access. Him taking ownership has really played a part in how he feels about his disorder. We got in touch with our CoRe manager, and she has just been a wonderful asset to us. She has really been with us all along the way. We went from being able to plan everything and living in the bubble to now, we know that our circumstances are always going to change from this idealistic plan that we might have. But even when you can't control your circumstances, you can always control your attitude towards those circumstances.
ELOCTATE® [Antihemophilic Factor (Recombinant), Fc Fusion Protein] is an injectable medicine that is used to help control and prevent bleeding in people with Hemophilia A (congenital Factor VIII deficiency). Your healthcare provider may give you ELOCTATE when you have surgery.
IMPORTANT SAFETY INFORMATION AND INDICATIONS
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IMPORTANT SAFETY INFORMATION
Do not use ELOCTATE if you have had an allergic reaction to it in the past.
Tell your healthcare provider if you have or have had any medical problems, take any medicines, including prescription and non-prescription medicines, supplements, or herbal medicines, have any allergies, are breastfeeding, are pregnant or planning to become pregnant, or have been told you have inhibitors (antibodies) to Factor VIII.
Allergic reactions may occur with ELOCTATE. Call your healthcare provider or get emergency treatment right away if you have any of the following symptoms: difficulty breathing, chest tightness, swelling of the face, rash, or hives.
Your body can also make antibodies called "inhibitors" against ELOCTATE, which may stop ELOCTATE from working properly.
Additional common side effects of ELOCTATE are headache, rash, joint pain, muscle pain and general discomfort.
If you have risk factors for developing abnormal blood clots in your body, such as an indwelling venous catheter, treatment with Factor VIII may increase this risk.
These are not all the possible side effects of ELOCTATE. Talk to your healthcare provider right away about any side effect that bothers you or that does not go away, or if bleeding is not controlled after using ELOCTATE.
INDICATIONS
ELOCTATE® [Antihemophilic Factor (Recombinant), Fc Fusion Protein] is an injectable medicine that is used to help control and prevent bleeding in people with Hemophilia A (congenital Factor VIII deficiency). Your healthcare provider may give you ELOCTATE when you have surgery.
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INDICATIONS
ELOCTATE® [Antihemophilic Factor (Recombinant), Fc Fusion Protein] is an injectable medicine that is used to help control and prevent bleeding in people with Hemophilia A (congenital Factor VIII deficiency). Your healthcare provider may give you ELOCTATE when you have surgery.
