JENNY AND PAXTON DIVE IN

Narrator:

ELOCTATE antihemophilic factor recombinant FC fusion protein. Please stay tuned for important safety information at the end of this video.

Jenny:

Before Paxton was born, I really just lived in a bubble world where anything that we had thought that we were going to do, we would just plan it and do it. We had wanted to get pregnant. We got pregnant pretty quickly. And there he was, and we really did feel like this is it. Life is so good right now. It was just, it was perfect.

I'm Jenny. I live in Ohio with my husband Steve and our two kids Paxton and Millie. Paxton is 7 and he has moderate hemophilia A. The day after Paxton was born, he went down for circumcision and didn't return for a long time. They told us that they needed to transfer him to the Children's hospital, and they were going to take him to the NICU there. The doctor came in, and sat down, and just delivered the diagnosis to us and said, “your son has hemophilia.” And I'm like, “OK what does that mean? What do we do? How do we fix it?”

You know when they started saying things like, “this is lifelong,” that was hard. With hemophilia, there's sort of a honeymoon phase where there's not a lot that takes place based upon, you're always holding a baby, or they're in a bassinet, or they're in a car seat, but with increased mobility, came increased infusions. We made the decision to not put him on a prophylactic schedule. So, we were just treating on demand, but we ended up in the hospital quite often. It kind of became a second home to us. Sometimes he'd be a pincushion. We'd have to bring a team of nurses in that would have to brace all of his limbs and hold him down. When you're a mom and your instinct is to protect your child, sometimes it doesn't feel like you're protecting them by pinning them down and having them scream at the top of their lungs till they're sweating and red faced. It doesn't feel like you're protecting them.

So, when Paxton was getting ready to start preschool, we sat down with our hematologist, and we talked about the products that were on the market and we really liked that ELOCTATE would be a prolonged half-life. We went over all of the benefits and risks and we talked about headaches and rash and after discussing all that, my husband and I decided that ELOCTATE was going to fit best for our family. We're really happy with our results with ELOCTATE. Paxton is treated twice a week. We do Mondays and Thursdays. That's worked really well for our family. Paxton has not had a breakthrough bleed since he's been on the dose. It's made a really routine lifestyle for us and instead of hemophilia being in the spotlight, it kind of gets to take a back seat and we just go on with our lives. This is just our experience so talk to your hematologist to find out more.

Paxton has really amazed me with how he likes to help and take part of the infusion process. He gets his medication out and ready. He mixes it up. He helps me push when I get IV access. Him taking ownership has really played a part in how he feels about his disorder. We got in touch with our CoRe manager, and she has just been a wonderful asset to us. She has really been with us all along the way. We went from being able to plan everything and living in the bubble to now, we know that our circumstances are always going to change from this idealistic plan that we might have. But even when you can't control your circumstances, you can always control your attitude towards those circumstances.